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NICE mental health clinical guideline development groups

Group type: 3. Institution or initiative-specific

Contact details

Named contact:

There is no specific contacts but more information about this process can be found on www.nice.org.uk/about/nice-communities/public-involvement

Email address:

For general enquiries about involvement in NICE guideline email PIP@nice.org.uk

To contact the NCCMH, email NCCMHAdmin@RCPsych.ac.uk

Twitter: @nicecomms

Telephone: +44 (0)300 323 0140

Address:

National Institute for Health and Care Excellence
10 Spring Gardens
London
SW1A 2BU

Remit of the group

These are Expert Advisory Groups for NICE guidelines.

To see positions available see www.nice.org.uk/Get-Involved/join-a-committee, part way down the page, under “Patients, service users, carers and lay people”.

This is not a single research group as such. NICE’s role is to improve outcomes for people using the NHS and other public and social care services. To do this, NICE develop a large range of guidance based on the available research evidence on the topic.  NICE’s collaborating centres (NCCs) help develop guidelines by harnessing the expertise of the royal medical colleges, professional bodies and patient/carer organisations. Every guideline in development has an expert group, called the Guideline Committee which includes 2-3 service user or carer members.

There are always 3 service users and/or carers on each group. If it is not possible to have service users on groups, for example if they are children, then there will still be 3 service user and/or carer representative and an additional focus may be held with children.

NICE mental health guidelines are developed by the National Collaborating Centre for Mental Health (NCCMH) which is a partnership between the Royal College of Psychiatrists and the British Psychological Society. So far, over 30 mental health guidelines have been developed and 2-3 new ones begin each year.

Frequency of meetings

Guideline committees meet for a full day approximately 12-15 times over a 20 month period, after which the final guideline is published.

Who can consult the group?

Since health and social care professionals are well represented within the Guideline Committees, the NCCMH has an interest in service users (people who have a relevant condition or disability) and carers (family and friends who provide unpaid) without a background in health or social care.

Service users and carers are full members of the guideline committee having equal status alongside the professional members, and supported by the NCCMH technical team. Service users and carers have an integral part to play in the guideline development process by ensuring that their experience informs all facets of the guideline.

Their experience of a particular mental health problem and its treatment means that they can contribute to discussions within the Guideline Committee about appropriate terminology, issues about diagnosis and stigma and adverse effects of treatment. They might contribute to writing sections of the guideline, including reviews of the experience of care. There is standing item on the agenda for each committee meeting to discuss servicer users’ and carers’ concerns and NICE’s Public Involvement Unit provides training and support for service users and carers working on NICE guidelines.

As well as being represented on the Guideline Committee, service users and carers can register as stakeholders (see www.nice.org.uk/get-involved/stakeholder-registration) and participate in consultation processes throughout the guideline development process.

The opportunity to engage directly with the guideline development process commences with a stakeholder workshop and consultation process to define the scope of the guideline for each topic.

The Guideline Committee assesses the available clinical and health economic evidence, use their expert clinical judgement and experience when evidence might be lacking and ensure that the needs of service users and carers are incorporated into the guideline. During this process, focus groups of service users and carers may be formed to provide specific guidance to the Committee that will inform the recommendations in the final guideline.

At a later stage, registered stakeholders are invited to comment on the draft version of the guideline. Each comment is considered and a response provided during these consultation processes.

At the conclusion of the guideline development process, information for the public and specific resources are developed and published alongside the guideline and are available on the NICE website.

Website

Podcasts of the experiences of Guideline Committee members including service users and carers can be found here: www.nccmh.org.uk/ab_cgs_podcasts.html

For more information about this process see www.nice.org.uk/about/nice-communities/public-involvement

For positions currently available on Guideline Committees and other groups see www.nice.org.uk/Get-Involved/join-a-committee

Publications

Taylor, C., Richens, Y., Shaw, F. & Evans, P. (2006) The Contribution of patients and the public to the NICE guideline. Midwives: The Official Journal of the Royal College of Midwives, 9, 390-391.

Harding E, Pettinari CJ, Brown D, Hayward M, Taylor C. Service user involvement in clinical guideline development and implementation: learning from mental health service users in the UK. International Review of Psychiatry. 2011;23:352-7.

Kendall T, Crawford MJ, Taylor C, Whittington C, Rose D; Guidance Development Group. Improving the experience of care for adults using NHS mental health services: summary of NICE guidance. BMJ. 2012;344:e1089.

Guidelines Published

Service user and/or carers were on GDGs of all of the following: All obtainable from www.nice.org.uk/guidance/published?type=CG#/guidance/published?type=cg. The column on the far right links to the GDG for each guideline, if you wish to see who the service user and/or carers were.

Guideline Publication date GDG
Antenatal and Postnatal Mental Health (update) Dec 2014 CG192
Bipolar (update) September 2014 CG185
Psychosis and Schizophrenia in Adults (update) March 2014 CG178
Autism in Children & Young People August 2013 CG170
Social Anxiety Disorder May 2013 CG159
Conduct Disorder in Children and Young People March 2013 CG158
Schizophrenia in Children and Young People January 2013 CG155
Autism in Adults June 2012 CG142
Service User Experience December 2011 CG136
Self-harm: longer term management November 2011 CG133
Common mental health disorders: Identification and pathways to care May 2011 CG123
Psychosis and Substance Misuse March 2011 CG120
Alcohol Dependence and Harmful Alcohol Use February 2011 CG115
General Anxiety Disorder January 2011 CG113
Depression – Chronic Health problems October 2009 CG91
Depression – Primary and Secondary Care October 2009 CG90
Borderline Personality Disorder January 2009 CG78
Antisocial Personality Disorder January 2009 CG77
Attention Deficit Hyperactivity Disorder (ADHD) September 2008 CG72
Drug Misuse – Opioid Detoxification July 2007 CG52
Drug Misuse – Psychosocial Interventions July 2007 CG51
Antenatal and Postnatal Mental Health (APMH) February 2007 CG45
Dementia November 2006 CG42
Obsessive-Compulsive Disorder (OCD) October 2005 CG31
Depression in Children and young people September 2005 CG28
Post-Traumatic Stress Disorder (PTSD) March 2005 CG26
Self-Harm July 2004 CG16
Eating Disorders January 2004 CG9

 

Guidelines in Progress

Service user and/or carers are on GDGs for all of the following: All obtainable from www.nice.org.uk/guidance/published?type=CG#/guidance/indevelopment?type=cg. The column on the far right links to the GDG for each guideline, if you wish to see who the service user and/or carers were.

Guideline Publication date GDG
Violence and Aggression (update) April 2015 Link
Challenging behaviour and Learning Disabilities May 2015 Link
Children’s Attachment Oct 2015 Link
Mental health problems in people with learning disability Jun 2016 TBC
Mental health of people in prison Dec 2016 TBC
Eating Disorders (update) TBC TBC
Depression in Adults (update) TBC TBC